Health: “My condition is so uncommon that it lacks a name” Debbie Schwartz experienced embarrassment as a teenager when doctors told her that her diseases were all in her head.

The 47-year-old former teacher described it as “soul-destroying.” “I felt
helpless, alone, and ashamed.”
Debbie is one of the hundreds of people seeking information on a disease
that is so uncommon that physicians have not been able to identify it.
She is one of the first patients in the UK clinic dedicated to treating
people with diseases without a name.
Many of Debbie’s teenage years were spent traveling the length and breadth
of the nation with her anxious parents as they sought answers about what
was wrong with their one and only daughter.